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How Should I Deal With a Person With M.E?
The most important thing to remember, is that M.E. sufferers get very tired, and it may be disastrous for them not to rest when they need to, and for as long as they need to. Also, "normal" activities like conversation, which require very little energy from a healthy person, may be very exhausting for someone with M.E.
If an M.E. sufferer tells you they have to rest, or they cannot carry on talking to you, or they want you to leave - respect their need. It may seem selfish, but be assured - it is absolutely necessary.
Similarly, if a sufferer tells you they are not physically capable of doing something (e.g. walking to the corner shop) - believe them. What they may mean, is that they might be able to do what ever it is, but know that they will suffer for it afterwards.
Sometimes, an M.E. sufferer may appear quite stupid, because they don't seem to be taking in what you are saying to them. These problems of concentration and memory are symptoms of the illness, and will vary according to how ill the person is feeling, and how exhausted they are. Slow down your conversation, and if necessary say or explain things to the sufferer a second time.
Remember that because of the effects of the illness on brain chemistry, some people with M.E. may be a little emotionally sensitive. Try to take this into account if the sufferer is irritable or tearful for no obvious reason.
If you ask a person with M.E. to do something or to be somewhere at s specific time, make sure they write it all down, as sufferers may make commitments and then be struck with a bout of "M.E. memory" and forget all about them! They won't feel offended if you remind them. Above all - be patient!
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