Welcome to the MEHELPINFO Guestbook

Welcome to the MEHELPINFO Guestbook

Due to the large number of inappropriate messages, the Guest Book facility has been suspended as of 20th June 2006

All unrelated entries have been removed!

Feel free to view the messages people have sent since 2003 and I thank you all for your continuing support

From: Lauren Email: <>
Town: London
County: United Kingdom
Posted on: Thursday, June 26, 2003, 05:22 PM

I'm tracking information for a friend in Norway who has severe M.E. She is 25 years of age, has suffered for 2 years, lives in a blackened room, gets spoon fed mushy food, cannot stand any noise, any light, any touch to her skin. She has not walked for 6 months and has had no physio for 6 months as the touch is unbearable. She has 4 nurses visit a day to feed and bath her and has had a mere 10mins verbal contact with her parents over the last month. The doctors are no help whatsoever and I'm scared that I'm going to lose my friend...... Is there anything I can do for her in such an extreme case????

From: Phil Email: <>
Town: Chesterfield
County: Derbyshire
Country: UK
M.E. Duration: 5-6 years
Posted on: Sunday, August 24, 2003, 07:09 PM

Thank you for helping me to confirm the reason for my symptoms, I will now have the courage to talk to my GP. Until now I have felt unable to do so as I had believed that ME was unlikely to be taken seriously. Amongst other problems I have been taking prescription medication for over 2 yrs for stomach problems, but having now embarked on a self styled restrictive diet I have been medication free for over 2 months. I feel quite positive now and thanks to lots of fresh fruit I'm starting to feel revitalised albeit for short periods. Thanks

From: tanya king Email: <>
Town: clevedon
County: northsomerset
M.E. Duration: 12 years
Posted on: Friday, August 29, 2003, 09:40 PM

hi ,i would love too talk with someone who understands. Tanya.

From: Emma Tugwell Email: <>
M.E. Duration: 12 months
Posted on: Monday, September 01, 2003, 02:56 PM

Love your website. Think you should mention CFS though, as no-one is going to get a diagnosis of ME in the UK these days - and it would be a shame for new patients to miss out. Would question whether someone who works full-time acually has ME/CFS. Well done!!

From: Glenn Varrier Email: <>
Town: Wakefield
County: West Yorks
Country: England
M.E. Duration: Don't know, not even sure yet.
Posted on: Saturday, September 06, 2003, 11:22 PM

I have many symptoms but still don't know enough as to whenter or not I ddi indeed havd ME, I am trying to find out what is wrong with me ,and to be honest, I think I have found it.

From: Lynn Haynes Email: <>
Town: wimauma
County: hillsborough
Country: USA
M.E. Duration: at least 30 years
Posted on: Wednesday, September 17, 2003, 03:30 AM

I was born with an ear infection. Many years later it was diagnosed labrynthisis. I am always ill and sickly. I am always depressed but it really gets bad when people get irritable and loud. I get very upset and literally go off the deep end. I want energy and a life. I do basically nothing. I clean house and get tired. Idont go any where or drive. I is physically nausiating to ride in a car. I had a severe dizzy spell in sixth grade. Ive been this way since. I walk with my head tilted to the right almost laying on my shoulder. What can I do? I am still trying to get a correct diagnosis. Doctors would laugh at me and say it's in your head. Please contact me at above address and HELP!!!!!

From: john Email: <>
Town: storrington
County: west suusex
Country: uk
M.E. Duration: just been told i have it
Posted on: Saturday, September 20, 2003, 06:02 PM

interesting reading.

From: caroline Email: <>
Country: malta
M.E. Duration: I am not sure....
Posted on: Thursday, September 25, 2003, 03:01 PM

I am not sure if I do have ME, I was never diagnosed...but I suffer from most of the symptoms mentioned. Headaches...lack of concentration, lightheadedness, sensitive to light, noise, and smells!! Irritability, mood swings, breathlessness...and I do get tired so easily...I feel like an 80 year old sometimes. :(

From: MICHELLE Email: <>
Town: GT. YARMOUTH
County: NORFOLK
Country: ENGLAND
M.E. Duration: 15 YEARS PLUS
Posted on: Sunday, October 05, 2003, 04:11 PM

From: Anna Earle Email: <>
County: Cheshire
Country: England
M.E. Duration: 2 years
Posted on: Friday, October 17, 2003, 09:02 PM

I thought the web site was set out really well, and totally managable to understand, even I could! Thought all my friends could do with some help in understsanding so I've sent them to this site! Thank you!

From: Lynn Haynes Email: <>
Town: wimauma
County: hillsbourough florida
Country: united states
M.E. Duration: many many years just dianosed a mounth ago
Posted on: Sunday, October 26, 2003, 12:29 AM

It is definately important to seek a good doctor. My doctor listend and went to the website just to understand what it is i was trying to say to him. He was the first. I was so bad i felt tingally all over like my whole body was asleep. just walking to the restroom right around the corner took all I had. I was put Lexapro it is doing ok but I have to take Meclazine for labrynthitis unfortunately an ear infection before birth caused this in me many times I've had them, most turn viral, I am thankful for your website because it's important for people to realise that this exists. I want to wish all of them good luck and do their best to get better. Thank God for Barbara.

From: Hilary Glenn Email: <>
Town: Burton upon Trent
County: Staffs
Country: England
M.E. Duration: 2 1/2 years
Posted on: Saturday, November 15, 2003, 05:33 PM

i struggled teriibly for the first year - then coped pretty weel. Am really fed up at the moment becasue everything is getting worse again but I need to go back to basics diet, resting and paced exercise - i just tried to do too much. The website is reassuring and very helpful, thank you. It has been a comfort to know that i am not alone. Best wishes

From: Anton Bennett Email: <>
Town: Salford
Country: UK
M.E. Duration: Just diagnosed - but had symptoms for quite a while
Posted on: Friday, November 21, 2003, 07:37 PM

Thanks for this site - it's good to find somewhere where all the possible symptoms are listed, so that I can compare my symptoms and thus be reassured that 'my' diagnosis is the right one - especially as its taken a while to be able to get this far with doctors. Thanks also for the practical advice.

From: Alison Email: <>
Town: Crewe
County: Cheshire
Country: England
M.E. Duration: I have Fibromyalgia (similar)
Posted on: Thursday, November 27, 2003, 09:29 PM

I found your website really interesting, with many useful suggestions and lots of encouragement. There are lots of similarities between ME/CFS and Fibromyalgia from which I suffer, in fact, some Doctors believe them to be the same condition. Keep up the good work!Alison

From: Amanda Blacker Email: <>
Town: Deal
County: Kent
Country: England
M.E. Duration: Since April 2003
Posted on: Monday, December 01, 2003, 01:13 PM

Thanks for the information that has been given on this site,i have beeen unwell since April but only just got diagnoised this last week,am desperate to find out all i can so that i can help myself get well.

From: Nick Price Email: <>
Town: Gloucester
County: Gloucestershire
Country: England
M.E. Duration: CFS for 6 months, 5 years previously
Posted on: Sunday, December 14, 2003, 09:36 PM

Thanks for providing such a wealth of information. It's nice to know that i'm not alone, even tho i wouldn't wish this problem on my worst enemy. I will return to this page often i think. Take Care. Nick

From: Anne James Email: <>
Town: Cardiff
County: Glamorgan
Country: Wales
M.E. Duration: Diagnosed for 1 year
Posted on: Wednesday, January 21, 2004, 12:40 PM

THe day to day relentnessless is the hardest to deal with. This together with the difficulty in pacing when you are used to being very active and wanting to go,go,go on good days makes life a series of bargains and negotiations with you body. Anne

From: Shirley Grant Email: <>
Town: NAIRN
County: HIGHLAND
Country: SCOTLAND
M.E. Duration: 7 years
Posted on: Tuesday, January 27, 2004, 06:52 PM

Have had ME very bad since 1998. I've had to give up work. I have been for complementary therapy in Scotland. It is helping to give me some energy just to get out of bed.

From: James Email: <>
Town: Ipswich
County: Suffolk
Country: UK
M.E. Duration: Still Undecided
Posted on: Thursday, January 29, 2004, 04:55 PM

You're website is the best I've found on M.E. finding out all the info on what it is, what I should do, etc etc.. Thankyou

From: Jo Raine Email: <>
Town: Hartlepool
Country: UK
M.E. Duration: 9 years
Posted on: Saturday, January 31, 2004, 10:38 PM

I wish something like this had been available when I first fell ill. After all the things I was tested for being told I had ME came as something of a relief - at least I knew that this was as bad as it would get. Pacing yourself and planning ahead are two of the most important lessons you can learn to deal with ME. 'Listening' to your body is important as well - don't be brave and don't overdo it when you're having a 'good' day. It hurts too damn much! Touch wood since I got over the initial attack when I was off work for 9 months, it bites back every couple of months for a day or two and then I'm back to normal.

From: sharron e monkhouse Email: <>
Town: carlisle
County: cumbria
Country: uk
M.E. Duration: 18 years
Posted on: Sunday, February 01, 2004, 03:31 PM

hi,my life fell apart after contracting chicken pox at the age of 19. I just could'nt get well after this,and i increasing got worse over the years. On the really bad days (and there were many)i prayed to god to either let me get well or let me die. My life-line came in the angel that is my homeopathic doctor. She is a wonder and i would'nt have survived without her. WISHING GOOD HEALTH TO ALL, SHARRON

From: debbie Email: <>
Town: worthing
County: west sussex
Country: england
M.E. Duration: 8 months
Posted on: Thursday, March 04, 2004, 12:37 PM

thanks for an interesting website. Its nice to know there are other people like me who led a full and active life, working full time and bringing up a family,who now find the simplest tasks draining.

From: allison schooley Email: <>
Town: mansfield
County: Nottinghamshire
Country: england
M.E. Duration: 2years
Posted on: Tuesday, March 09, 2004, 02:42 PM

Hi i have just finished all the tests and they say I have chronic M E and I feel so tired and in a lot of pain both muscle and joint pain and a lot more ps love the site

From: Lois Martin Email: <>
Town: Warrington
County: Cheshire
Country: England
M.E. Duration: Diagnosed 4 months ago
Posted on: Tuesday, March 23, 2004, 11:07 AM

This has knocked me for six,i am such an active person.I used to be a post person then i had my son then i bought a pub, which i run with a business partner.I got the flu last October and it seems my body has never recovered. The thing is my business partner just doesn't understand and he has accused me of taking the p***.I have told him to be patient with me but he is too selfish.Working at night in a pub is the last thing i need after a day looking after my 3 year old.I can't believe how much pain i can be in, even when i have done nothing. It looks like i will give up the pub business because of my business partner and his unwillingness to understand.He should try being in my shoes!!!!!

From: David Milner Email: <>
Town: Halifax
County: West Yorkshire
Country: England
M.E. Duration: Possibly 22yrs
Posted on: Saturday, March 27, 2004, 02:47 PM

Hi Barbara hope you are well. I have found this site very helpfull in trying to find out what is causing me to be tired all the time.I passed out at home about a year ago and i have been having tests ever since.I was first diagnosed with epilepsy! which I disputed then Neurocardiogenic Syncope which is a little more accurate.However my symptoms do seem to match CFS ie:Anxiety,Deppression,Muscle aches,Fatigue,stomach problems etc.

From: katharine wener Email: <>
Town: barnet,london
County: herts
Country: england
M.E. Duration: 13 years (since i was 7)
Posted on: Wednesday, April 07, 2004, 07:01 PM

hi there, i think your site is really great! hope you are having a better day today. i wanted to let as many people know as possible about an ME petition that is asking for more PHYSICAL research to be done, please print off as many forms as u can and let people know as it will only help us in the long run! the petition is at www.meassociation.org.uk and the petition at http://www.meassociation.org.uk/petition_form.htm lots of *hugs* katharine xxxxxxxxxxx

From: j Email: <>
Town: aberdeen
Country: scotland
M.E. Duration: ?
Posted on: Wednesday, April 07, 2004, 09:58 PM

i have just read your article, and i have been treated for anxiety, and depression for the past year, and having read the symptoms of m.e. wondered if i have that. thank you for some useful information

From: dayna Email: <>
County: england
Country: uk
M.E. Duration: 4 years
Posted on: Thursday, April 08, 2004, 06:09 PM

Great site!!!!! Come and visit my website for ME, FMS, and HMS. http://www.myfibrosite.com/users/dayna/index.html And to visit my online support group for sufferers of FMS HMS CFS/ME. http://health.groups.yahoo.com/group/fmshmscfs/

From: Email: <>
M.E. Duration: do not know if it is allied to DP
Posted on: Thursday, April 15, 2004, 08:04 PM

I have suffered depersonalisation for many years and now seem to have acquired a new 'sympton' which seems to fit ME This is following a drugs trials on anti-epileptics of which I am not epilepltic - Wonderedifyou knew any connecttions or other iformation. Regards. Judie .

From: joane ellis Email: <>
Town: huddersfield
County: west yorkshire
Country: UK
M.E. Duration: 2 1/2 years
Posted on: Monday, April 19, 2004, 06:51 AM

i have suffered from M.E. for 2 and a half years now and like many, it is difficult to see a future for yourself and to stay positive. this is the first time, in a long time, that I have looked on the internet as I find some of the sites quite depressing. I have to say, whole-heartedly, this is the best site I have come across. It describes my symptoms 100% - better than I have ever been able to describe them myself. I want to say, thank you Barbara for understanding so well ! thank you.

From: Janette Toole Email: <>
Town: Harrogate
County: North Yorkshire
M.E. Duration: Approx 1 year
Posted on: Friday, April 23, 2004, 11:28 AM

I've only just been diagnosed as having M.E., this week and was quite ignorant of the facts. Reading the websites available have been such a relief but also upsetting because I can relate to so many of the expriences expressed - thanks for being so informative it helps when you are trying to understand what is happening to your body and mind...

From: Valerie Stanfield Email: <>
Town: Birmingham
County: West Midlands
Country: UK
M.E. Duration: Two or three years.
Posted on: Tuesday, April 27, 2004, 11:55 AM

It would be really helpful to be able to be able to talk to someone about this. At the moment I am off work and need advice on a number of problems. It has been really useful to read the information on your very acceccable web site. Thankyou.

From: josephine Email: <>
Town: barrhead
County: east renfrewshire/glasgow
Country: scotland
M.E. Duration: roughly 10 to15years
Posted on: Tuesday, May 11, 2004, 03:55 PM

thank you the most easiest web site to read and understand yet the best information i am so happy i came across it and i will be definitlly be writing the adress down cannot wait to show my family god bless from jo

From: lorna
Town: bath
County: avon
Country: uk
M.E. Duration: 1 an a half years
Posted on: Thursday, June 10, 2004, 08:38 PM

thanks for this website its really helpful to help explain to my friends what i have.

From: michaela
Town: selby
County: n.yorkshire
Country: england
M.E. Duration: 3yrs+
Posted on: Thursday, June 10, 2004, 08:55 PM

brill site, lots of very useful info

From: lindsey simmonds
Town: bridgend
County: mid glamorgan
Country: south wales
M.E. Duration: 20 months
Posted on: Sunday, June 27, 2004, 09:33 PM

i wish more people would beleive me when i am going through a bad patch. it is nice to talk to people in the same boat as me

From: Petula Maskey
Town: Macclesfield
County: Cheshire
Country: UK
M.E. Duration: Diagnosed approx 3 years
Posted on: Sunday, July 04, 2004, 10:38 PM

I find it so hard to get people to understand what i feel like having M.E. even my husband says he see no reason why i cant get at least a part-time job,he hasnt got a clue.

From: Luke Wilkinson
Town: Saxtead
County: Suffolk
Country: England
M.E. Duration: 1 month
Posted on: Saturday, July 10, 2004, 08:58 PM

this was a very imformative website that has helped alot, as i have not had M.E. for long i can not comment on some of the pages, but it seems that within this month i have already lost my life, i have just finished my GCSEs and this was meant to be the best holiday of my life but obviously not now

From: Yvonne
Town: canterbury
County: kent
Country: uk
M.E. Duration: 17 years
Posted on: Sunday, July 18, 2004, 01:07 PM

Thanks for the website , i love to read of others with the same problems as myself , although of course i wish none of us had to suffer with M.E. I wish you well Yvonne

From: Julie Mann
Town: Dereham
County: Norfolk
Country: England
M.E. Duration: 4 years
Posted on: Monday, July 19, 2004, 11:41 AM

very good site: you have the description of how I feel, spot-on!

From: CATHERINE JACKSON
Town: LEEDS
County: YORKSHIRE
Country: ENGLAND
M.E. Duration: DON'T NOW STILL WAITING TO FIND OUT
Posted on: Thursday, July 22, 2004, 06:57 PM

HAVE ALL THE SYMPTOMS AS EVERYBODY BUT CAN'T GET THROGH TO DOCTOR, IT'S THE LIGHT HEADEDNESS THAT GETS ME DOWN AS WELL AS THE MUSCLE PAIN IS TERRIBLE. BUT TRYING TO LIVE WITH IT AT MOMENT. GREAT WEB SITE. HOPE EVERYONE KEEPS WELL AND KEEP YOR CHIN UP..

From: jenny
County: lincolnshire
Country: UK
M.E. Duration: I haven't but now believe my husband has had it for almost 4years
Posted on: Friday, July 30, 2004, 01:56 PM

my very fit husband started to become seriously unwell some time ago - nobody took us seriously because every test, blood test, scan, oscopy, etc. etc. etc., showed him to be 100% fit. 4 years on, having lost our livelyhood, and at risk of losing our home because my husband even lost his job because he was so ill with strange symptoms, a consultant at a local hospital has now suggested ME as a probable cause. As my husband has lost an inordinate amount of weight he has to have one further consultation with a gastroenterologist to rule out and/or not miss any other possible diagnonsis.I reached the point of carrying round a piece of paper with me on which I would note his various symptoms as they occurred. Today someone passed on printed sheets from this site - every single symptom listed here is on my piece o

From: Corlie Koen
Town: Pretoria
Country: South Africa
M.E. Duration: 2 years
Posted on: Thursday, August 05, 2004, 07:44 AM

Good information. I hope after my husband read this he would understand how I feel and why I'm so tired.

From: Janis Silver
Town: Edinburgh
County: Midlothian
Country: Scotland
M.E. Duration: 6 months
Posted on: Tuesday, August 10, 2004, 03:05 PM

the easiest to follow and most informative website I have come across yet. well done!

From: Anji
Town: Edinburgh
Country: Scotland
M.E. Duration: just been diagnosed
Posted on: Wednesday, September 08, 2004, 03:29 AM

Being very scared and tired at the moment i find these kind of web pages gr8 comfort. I wish and hope soon to have my life and health sorted and to "live with it" as ppl say!!! I wish Barbara all the best and thank you for your page.

From: yvonne
Town: whitstable
County: kent
Country: GB
M.E. Duration: 17 years
Posted on: Friday, September 10, 2004, 07:21 PM

too tired to party your website is very very good , thanks

From: Annie Macrorie
Town: Straiton
County: Ayrshire
Country: Scotland
Posted on: Saturday, September 11, 2004, 01:29 PM

I have been suffering various and many, what i thought were completely unrelated symptoms. I do not know if ME is what i am suffering from, however, all lot of what i have read is spookily familiar!! I was a competitive cyclist with a good future in the sport, however have had many complications with my health.My unnatural need for an enormous amount of rest has always been a concern of both myself and my partner.I have used this website to try to get some answers and possibly put my thoughts to my G.P.I just hope i don`t get shot down in flames!!! Thankyou for your time.

From: Tina Doyle
Town: Rotherham
County: South Yorkshire
Country: England
M.E. Duration: since 2001 approx.
Posted on: Monday, September 20, 2004, 03:21 PM

From: Lisa Fournie
Town: Merlin
County: Ontario
Country: Canada
M.E. Duration: Officially diagnosed in Jan. 2005, have been ill since l988.
Posted on: Tuesday, September 21, 2004, 03:11 AM

I found your web page to be very informative and helpful. As I am trying hard to get well, I will read anything available on M.E. Your web page answered many questions I still have. Thanks for all the information. It also helped me to realize all my symptoms are real and not just in my head.

From: Teresa
Town: Blairgowrie
Country: Scotland
M.E. Duration: 12 years
Posted on: Friday, September 24, 2004, 12:31 PM

Had ME for 12 years but diagnosis for only 5 months. Life has been hell but finally I see light at the end of the tunnel!! Fantastic web site - clear concise and straight to the point. I will use this information rather than try to explain to friends/relatives. THANK YOU SO MUCH!!

From: caroline
Town: london
M.E. Duration: not sure probably - over 5 yrs
Posted on: Monday, September 27, 2004, 01:55 PM

I'm one of the few who manage to work but often spend weekends lying on the sofa feeling fed up. Love my job and enjoy my life but wish I could feel better

From: clare latimer
Town: louth
County: lincs
Country: england
M.E. Duration: 9 yrs
Posted on: Monday, October 04, 2004, 05:49 PM

i think this site is intresting ,im trying to find people near where i live to talk to or to find out about yogo in my area.

From: Karen Birkenbach
Town: Centurion
Country: South Africa
M.E. Duration: 2 years
Posted on: Sunday, October 10, 2004, 01:23 PM

Thank you so much for your informative website! I have referred all my friends to it so that they have a better understanding of my illness.

From: Natalie Reynolds
Town: Warsash
County: Hampshire
Country: UK
M.E. Duration: 8 years
Posted on: Thursday, October 14, 2004, 04:03 PM

Excellent website. The clearest, truest description I have read so far. It takes an M.E sufferer to be able to communicate our experiences properly. Keep up the good work!

From: david thorp
Town: dove holes
County: north derbyshire
Country: england
M.E. Duration: 9 months
Posted on: Tuesday, October 26, 2004, 04:28 PM

very dissolusioned by lack of medical help and understanding

From: Elaine Reid
Town: Larkhall
County: Lanarkshire
Country: Scotland
M.E. Duration: 17 months
Posted on: Monday, November 08, 2004, 09:49 PM

I am grateful to the people who have spent the time doing this web site. It allow me to show my family that others too suffer this illness which is very difficult to explain and accept. cheers

From: joni-may bayley
Town: holt
County: norfolk
Country: england
M.E. Duration: almost 3 years
Posted on: Friday, November 12, 2004, 12:31 AM

I developed M.E in march 2002.Between then & august that year i steadily went downhill, & moved back to my parents.By october 2002 I was so ill I ended up totally bed bound for 5 long months.I then started to pick up a bit,but was still very limited.I met my boyfriend in june 2003 & started to feel stronger in myself.Nov' 2003 I moved back home with my little girl.Since then it has been very hard going,&right now I feel very stuck & still can't do much at all,but I do feel lucky that i have improved a little. I have still got such a long way to go & i know i will get there,i just need to listen to my body more & get into a routine that will help. I'll never give up trying. Good luck to anyone who reads this. xxx

From: LORRAINE SHALE
Town: EDINBURGH
County: LOTHIAN
Country: SCOTLAND
M.E. Duration: 12 YEARS
Posted on: Saturday, November 27, 2004, 08:40 AM

i have not been diagnosed but i now know i do have ME. My symptoms are so strong now i cannot fight against them. It is a hurge sense of relief because over the years, none of the doctors have seemed to listen, and i have been left feeling helpless and very on my own.

From: Donnie Mackenzie
Town: Inverness
County: Highlands
Country: Scotland
M.E. Duration: Non.
Posted on: Monday, November 29, 2004, 02:12 PM

Your website is very impressive and straight-forward. I do not have ME, but it really comes accross that the website is produced someone looking out from the inside. respect.

From: catherine kerr
Town: dumfries
County: dumfriesshire
Country: scotland
M.E. Duration: just diagnosed
Posted on: Tuesday, November 30, 2004, 08:47 AM

thanks for this site it has let me understand a lot better

From: Tim Allington
Town: Southam
County: Warwickshire
Country: England
M.E. Duration: About two years
Posted on: Monday, December 06, 2004, 07:46 PM

This web site has the best description of my symptoms and will be really good for me to print out and give to everyone, friends and family etc. Thank you

From: alison ross
Town: bristol
County: south glos
Country: england
M.E. Duration: 1 yr
Posted on: Thursday, December 16, 2004, 08:25 PM

i good to read that there are other people out there with the same symptons as me and it is not all in my mind

From: Linda Hartnup-Dobson
Town: Smith River
County: Delnorte
Country: USA
M.E. Duration: 15 years
Posted on: Wednesday, January 05, 2005, 04:34 AM

This is something that runs thru the family in varying degrees. I have relatives that are absolutely disabled by it and then there is me . I have acute attacks rather than non stop Mallaise! Then there are those somewhere in between.

From: dave mcevoy
Town: preston
County: lancs
Country: england
M.E. Duration: no sure
Posted on: Wednesday, January 05, 2005, 08:33 PM

after searching for some time for a cure for each individuall problem I now realise I have me. thanks very informative web site

From: RHONDA M. OWENS
Town: HARTSELLE, ALABAMA
County: MORGAN
Country: UNITED STATES OF AMERICA
M.E. Duration: MANY YEARS
Posted on: Tuesday, January 11, 2005, 04:29 PM

YOUR WEB-SITE HAS BEEN VERY HELPFUL. THANKS!!!!

From: Jen
Town: Ramsgate
County: Kent
Country: uk
M.E. Duration: about 3 years now
Posted on: Tuesday, January 18, 2005, 11:54 PM

This is one of the best websites I have found about M.E One of the hardest things is getting people to belive I am ill and not just lazy. Does anyone else find this? I am 24

From: karen
Town: leeds
County: west yorkshire
Country: england
M.E. Duration: just over 16 yrs
Posted on: Saturday, January 22, 2005, 09:20 PM

m e is an awful illness i wouldnt wish it on any1 i just wish there was a cure it has ruined the past 16 yrs of my life since i was 25 hope u get well babara

From: karen
Town: leeds
County: west yorkshire
Country: england
M.E. Duration: just over 16 yrs
Posted on: Saturday, January 22, 2005, 09:20 PM

m e is an awful illness i wouldnt wish it on any1 i just wish there was a cure it has ruined the past 16 yrs of my life since i was 25 hope u get well babara

From: Alice
Town: Plymouth
County: Devon
Country: England
M.E. Duration: Dont know
Posted on: Wednesday, February 23, 2005, 02:52 PM

I have not been diagnosed with ME but I have been ill for about four years and getting worse. I am trying to find out what could be wrong with me and I have looked at your website and I have to honestly admit that I have every symptom that you list. I am hoping to take this to my doctor and try to find out if this is what I have. Thank you for you help

From: Melanie Palmer
Town: Hayes
County: Middlesex
Country: England
M.E. Duration: 18 months
Posted on: Friday, February 25, 2005, 09:17 PM

Thank you for taking the time to do this website. Its the best one I have found that would help someone who doesnt know what M.E is to understand it better.

From: nour
Town: cairo
County: egypt
M.E. Duration: recently
Posted on: Saturday, February 26, 2005, 08:20 PM

From: J. Bronwen Martin
Town: Arlesey
County: Bedfordshire
Country: GB
M.E. Duration: since'99
Posted on: Tuesday, March 08, 2005, 06:43 PM

I had a bout of flu and didn't recover as I should have. I had been suffering a lot of stress at work after getting divorced. I was off work for 6 months and sometimes still struggle if I have a sugar binge or stress creeps up on me along with a cold and a busy few days. I did a relaxation technique called Autogenic Therapy which still helps,and Reflexology. I took and still take Aloe juice, Fish oils and multi vits. I swim - gently -when I can and do Pilates a bit to try to keep mobile. Most of the time I function OK if I'm careful. I'm a Deputy head teacher and usually spend the first few days of every holiday in bed and a lot of the rest of the time catching up on paper work. Being single I have no option other than to work and will have to continue untill I'm 65 to have a house and some sort of pension.

From: theresa
County: tyne&wear
M.E. Duration: 34 year
Posted on: Wednesday, March 09, 2005, 07:07 PM

fantastic site thank you

From: Yvonne Gransby
Town: Luton
County: Bedfordshire
M.E. Duration: December 2004
Posted on: Saturday, March 12, 2005, 04:33 PM

I had a chest infection early december and became really ill, i had two months in bed i had a brain scan,and blood tests done nothing was found.I have been so ill with heart palpatations,my legs ,arms and feet really hurt and as for my head,well it feels it could explode sometimes.I am finding it really hard to deal with it at the moment i wish there was someone who i could talk to or to wave a majic wand so i could feel better.Most of all i feel sorry for my young family .

From: Erika Tobiassen
Town: Bude
County: devon
Country: England
M.E. Duration: 14 years
Posted on: Sunday, March 13, 2005, 01:05 PM

it's good to see a real m.e web site for me. thanks.

From:
Posted on: Monday, March 14, 2005, 01:45 PM

From: karen Barker
Town: leeds
County: west yorkshire
Country: england
M.E. Duration: 16 yrs
Posted on: Monday, March 14, 2005, 09:22 PM

good luck to all those searching for a cure i hope you all recover to full health again.its an awful illness i wouldnt wish it on anyone.

From: kerri
Town: norwich
County: norfolk
Country: england
M.E. Duration: about one year
Posted on: Tuesday, March 29, 2005, 05:31 PM

thankyou for writing this website it has helped so much. i have only just been diagnosed with m.e. after 10 months of the doctors filling me full or anti depressants, diazapam and betablockers! when i was told i have m.e. i didnt really understand it, all the websites and books i read are so complicated, two years ago i could probably understand but ive lost so much of my brain power now i just cant take it in. but you explained everything i had been feeling, it felt like your website had been written by me without me knowing! it made me cry with relief to realise that i wssnt going mad like the doctors made out but also cry with fear for how bad this could get. thankyou for helping me to understand.

From: lesley bell
Town: stanley
County: co durham
Country: england
M.E. Duration: on and off for 7years
Posted on: Wednesday, April 06, 2005, 08:53 PM

enjoyed reading your pages , just had mumps which has brought on another attack. got used to living and coping with me but the mumps have set me back seven years . lesley

From: Paul
Town: Crowborough
County: East Sussex
M.E. Duration: 17 years
Posted on: Wednesday, April 13, 2005, 05:08 PM

What an excellently put together site. Clear and easy to understand, and full of excellent information for all. I hope those who doubt M.E exists read your site, and learn to understand what is really involved in this crippling illness.

From: Liz Hotson
Town: Stockton On Tees
County: Cleveland
Country: England
M.E. Duration: 15 years
Posted on: Friday, April 15, 2005, 01:49 PM

I understand when people with ME think others will look at you as if you are exaggerating about the tiredness, memory loss etc. As if you are using it as an excuse to get out of things. But this is the total opposite of we are feeling. I cannot even look after my grandchildren like everyone else. It is so frustrating for me. I am now really struggling with my work and dont feel as if I can go on with it anymore.

From: Liz Hotson
Town: Stockton On Tees
County: Cleveland
Country: England
M.E. Duration: 15 years
Posted on: Friday, April 15, 2005, 01:55 PM

I understand when people with ME think others will look at you as if you are exaggerating about the tiredness, memory loss etc. As if you are using it as an excuse to get out of things. But this is the total opposite of we are feeling. This guestbook has cheered me up, just reading all of your comments has helped me to realise that I am not just the only one. THANK YOU! I cannot even look after my grandchildren like everyone else. It is so frustrating for me. I am now really struggling with my work and dont feel as if I can go on with it anymore.

From: jason webb
Country: surrey
M.E. Duration: I do not have it !
Posted on: Saturday, April 23, 2005, 03:52 PM

From someone who does not have ME, keep on going...things will get better!

From: David Owens
Town: Washington
County: Tyne & Wear
Country: UK
M.E. Duration: Recently diagnosed
Posted on: Monday, April 25, 2005, 08:23 AM

Since a very bad flu infection last year, off work for 10 weeks, and diagnosed with a virus infection I have felt 'unwell' since and put the tiredness down to old age (53!). However after telling my Physio about my symptoms she immediately said I had ME. She actually special ises in treating people with ME and has given talks on behalf of the ME Society. I start treatment in a couple of weeks to see if things will be any better. I never thought, in all this time, that the pain and tiredness was nothing other than getting older!

From: Duncan Wilson
Town: Falkirk
County: Stirlingshire
Country: SCOTLAND
M.E. Duration: 12 LONG YEARS
Posted on: Thursday, April 28, 2005, 06:02 AM

I HAVE HAD MANY A KICK IN IT HAS TOTALLY DISABLED ME I HAVE LOST MY WIFE AND FAMILY , JOB AND ALL MY FREINDS I AM AT THE END OFF MY TETHER WITH THIS DISEASE PLEASE PLEASE HELP ME

From: tania barrett
Town: Templecombe
County: somerset
Country: england
M.E. Duration: 3 years
Posted on: Thursday, April 28, 2005, 04:30 PM

3 years of bad muscle pain, burning limbs dizziness loads more symptoms ,3 years on incapacity benefit 3 years wasted with this illness. im supposed to be in the prime of my life (m.e started when i was 30 however i feel 95. please let me get better.

From: joan fagan
Town: kirkcaldy
County: fife
Country: scotland
M.E. Duration: six weeks
Posted on: Sunday, May 08, 2005, 05:13 PM

no one seemed to believe that i was unwell

From: m
M.E. Duration: about 6 months
Posted on: Monday, May 09, 2005, 07:19 PM

this website was very useful 2 me i am a young sufferer and none of my frends understand wot i am goin thro. they dont believe im ill and i hope tht this website will help them understand

From: Hannah
Country: England
M.E. Duration: 6 years
Posted on: Thursday, May 12, 2005, 05:00 PM

this website has been very helpful and has made me less worried about the strange symptoms i have as i was starting to worry it wasn't m.e and something worse! now hopefully the people that don't think it exists will understand more!

From: shaun duff
Town: northampton
County: northamptonshire
Country: england
M.E. Duration: dont know
Posted on: Monday, May 16, 2005, 03:20 PM

From: Gina Daly
Town: Bordon
County: Hampshire
Country: England
M.E. Duration: 4 years
Posted on: Thursday, May 19, 2005, 03:30 PM

I am only just diagnosed having 'fought' for a diagnois of my symptoms for 4 years. Your website is the best I have found so far and helped me to convince my G.P. that I did not have just another virus! Thank you so much.

From: Isabella Carson
Town: Warrington
County: Cheshire
M.E. Duration: Thirteen years
Posted on: Wednesday, May 25, 2005, 07:07 PM

I was only diagnosed in the last three years. I would be grateful for any information as i have tried everything from it all being in my mind, pain killers, deppressants,accupuncture, Massage.Therapy Hydro pool but when i think i am feeling better the next minute iam in a worse state from what i was in the begining

From: LOUISA GARTHWAITE
Town: BULFORD
County: WILTSHIRE
Country: ENGLAND
Posted on: Monday, June 13, 2005, 02:22 PM

I HAVE FIBROMYALGIA BUT MY CONSULTANT THINKS I AM DEVELOPING M.E I HAVE READ ALL THE INFO AND FOUND IT VERY HELPFULL.THANK YOU

From: Jane Terris
Town: Bognor Regis
County: West Sussex
M.E. Duration: Just on 6 years
Posted on: Wednesday, June 15, 2005, 10:50 AM

I love your website, very cheerful and fun but also containing some great advise. My son and I are in the progress of building a website for M.E. sufferers and those whose lives have been affected by M.E. Would you be interested in writing 'your journey with M.E.' to put on it. Hope to hear from you with any views. Jane Terris

From: karin valentine
Town: chichester
County: west sussex
Country: uk
M.E. Duration: 4 years
Posted on: Wednesday, June 29, 2005, 02:00 PM

i was very ill 4 years ago and diagnosed with depression however i have now been told i have Me and that he depression is only a sympton. I found you webpage very helpful and vill get my family to visit it to better understand my life as you site puts into works how i feel.

From: Angela Blay
Town: Wymondham
County: Norfolk
Country: UK
M.E. Duration: Not long
Posted on: Thursday, July 21, 2005, 09:24 AM

I've not been diagnosed yet, but my husband & I think I have it. I've been prescribed beta blockers for heart palpitations & anxiety, but the symptoms don't go away. Extreme tiredness, memory problems, excessive muscle aches etc. I've got 2 children under 4 too with no help.

From: GARETH MILLS
Town: RHOSNEIGR
County: ANGLESEY
Country: WALES
M.E. Duration: 2 MONTHS?
Posted on: Thursday, July 21, 2005, 10:49 AM

THANK-YOU FOR YOUR SITE, I INTITIALLY HAD HEART TESTS, GASTRO / ENDOSCOPY / ACID REFLUX TESTS, YOUR SYMPTOMS PAGE DESCRIBE TO A 'T' THE PROBLEMS I AM HAVING. I HAVE SOMETHING TO HANG MY HAT ON. VMT.

From: rebecca flowerdew
Town: malaga
County: casares
Country: spain
M.E. Duration: maybe 4 years
Posted on: Thursday, August 11, 2005, 03:37 PM

Not sure if i have ME but the symptoms may suggest it, albeit very mild compared to some cases i've read about. I've always had more energy than anyone i know. People have always said they don't know how i do it. I got by on 4 hours sleep per night & felt great. I was a single mum of two for years, ran my own business full time & had a very hectic social life all of which i enjoyed immensly. I've always been a very happy, positive person & consider myself strong, self motivated, well organised & independant. I moved to Spain four years ago for an easier life & so that i could spend more time with my children. I can honestly say now that perhaps i thrived on being so busy. It may not have been too good for me but i was so happy. Six years ago i met a man so wonderful that three years ago he became my husband.

From: rebecca flowerdew
Town: malaga
County: casares
Country: spain
M.E. Duration: maybe 4 years
Posted on: Thursday, August 11, 2005, 03:41 PM

From: rebecca
Town: malaga
County: casares
Country: Spian
M.E. Duration: Maybe 4 years
Posted on: Thursday, August 11, 2005, 04:03 PM

Con'td. Blessed also with some fab friends i couldn't have been happier. I started feeling overwhelming tiredness but put it down to the heat, surely i should have acclimatized by now! Sometimes whilst driving i have to pull over so i can sleep maybe for just 10 minutes to recharge my batteries. My kids got used to that.At the moment it's only the joints in my hands that hurt & feel bruised, i rarely feel refreshed after a nights sleep,i have headaches, i'm irritable & for that i hate myself as i get angry at stupid things, therefore my kids are suffering. They are fed up with me now always being tired & find me boring. I lack concentration & sometimes forget what i'm saying mid conversation. I sometimes have chest pains at night & tingling in my fingers. Could it be mild ME?

From: Ali
County: cambridgeshire
Country: UK
M.E. Duration: 18 months
Posted on: Tuesday, August 16, 2005, 04:56 PM

Hi nice site, food tips are spot on! they are exactly the sort of things that help keep my sugar levels even.

From: Sandra Draper
Town: Basingstoke
County: Hants
Country: UK
M.E. Duration: 2 years
Posted on: Tuesday, September 20, 2005, 09:28 AM

I haven't had a cold since I have had ME and was just wondering if anyone else has as I read an article that said people with ME have higher levels of inteferon a natural chemical than people who don't have ME. Has anyone else heard about this and why don't they do a test to see if we have higher levels so it can be easier to diagnose?? Great website.

From: Rachel
Town: Dalkeith
County: Midlothian
Country: UK
M.E. Duration: 10 yrs
Posted on: Tuesday, September 20, 2005, 02:39 PM

From: Deborah UK
Town: Aberdare
County: Mid Glam
Country: UK
M.E. Duration: 5 years
Posted on: Saturday, October 29, 2005, 02:43 PM

hi I found your site so good, I have had m.e for 5 years and was doing quite well but an now going through a very bad relapse with all the awful symptoms so its a hard time at the moment. from Deborahx

From: mark clerkin
Town: shepherds bush
County: london
Country: england
M.E. Duration: sister for 10 years
Posted on: Monday, November 07, 2005, 09:16 PM

are there any people who have recovered from ME that i can contact to maybe find a common cause for their recovery that obviously up until now has not been found by the doctors ,please email me if you can help markclerkin@aol

From: Robert Robinson
Town: Leeds
County: W.Yorkshire
Country: England
Posted on: Thursday, December 15, 2005, 10:57 AM

It is my wife who has recently been diagnosed with M.E and thanks to very useful sights like yours I am able to help her loads so many thanks and all the best to you.

From: Chris Bone
Town: Matamata
County: Waikato
Country: New Zealand
M.E. Duration: feels like forever but only about a year
Posted on: Friday, January 06, 2006, 10:10 AM

I am not imagining it am I? Sometimes with my husband and children I feel they think I am being lazy. Unable to walk to the shops and back, keep the house tidy and remember all their appointments etc. I know these feelings are normal but I can't help it. Thank you for your website Barbara, I hope to revisit it by putting in on my favourites page so I don't forget the website!!!!

From: Sue Powney
Town: Portsmouth
County: Hampshire
Country: England
M.E. Duration: 8 Years but only 1st day diagnoised
Posted on: Thursday, January 19, 2006, 04:23 PM

Only just looked at the site briefly as I am still in shock, relief anger and God know what else. But from what I,ve seen I's good and reasuring. Looking for answers to alot of questions at the moment.

From: AMI RUTTER
Town: STOKE-OJ-TRENT
Country: ENGLAND
M.E. Duration: NA
Posted on: Monday, January 23, 2006, 05:24 PM

HAVING JUST READ ALL OF THE INFO OF THE SITE I AM CONVINCED THIS IS THE MYSTERY ILLNESS THAT IS AFFECTING MY PARTNER, IT IS AMAZING TO FINALLY HAVE AN ANSWER TO WHAT IS CAUSING HIS ILLNESS AND WE HAVE NOW MADE AN APPT TO SEE HIS DR FOR FURTHER ADVICE - THANK YOU

From: AMI RUTTER
Town: STOKE-ON-TRENT
Country: ENGLAND
M.E. Duration: NA
Posted on: Monday, January 23, 2006, 05:25 PM

From: mark
Town: birmingham
County: west midlands
Country: uk
M.E. Duration: 10 years
Posted on: Tuesday, January 31, 2006, 12:25 PM

this site is amazing it is like looking in a mirror at my self its so full o f information

From: Graham Donald Kennedy
Town: new marske
County: redcar cleveland
Country: united kingdom
M.E. Duration: since 1994
Posted on: Monday, February 13, 2006, 10:17 AM

i have learned a lot from your site thank you

From: JANE
Town: GLASGOW
County: SCOTLAND
M.E. Duration: 6YRS
Posted on: Thursday, February 16, 2006, 02:07 PM

i am 35yrs old,with 3 children,yougest is 6,i live in my room as i cant use the stairs,my council wont help me move as id have to be on D.L.A,but iv applyed 3 times and have failed,i feel a bad parent as im on my own,i cry all every night and wish my life to end,my kids keep me going,i take every day as it comes,im now moving to a flat,so i dont have stairs,i couldent get a stair lift due to having a child under 8yrs.

From: Lisa Kane
Town: JARROW
County: Tyne and Wear
Posted on: Wednesday, March 01, 2006, 08:24 PM

From: Claire Hennings
Town: Charlton
County: London
Country: UK
M.E. Duration: 4 Years
Posted on: Friday, March 10, 2006, 09:56 AM

This is a great site, it's very easy to use without all the horrible medical words. The advice is very real I need to have these on a screen saver to keep reminding myself to pace myself. Easier said than done!! Thank you.

From: mark
Town: derby
County: derbyshire
Country: uk
M.E. Duration: 10 years
Posted on: Monday, March 13, 2006, 09:18 AM

A good source of information, excellent

From: sarah
Town: watford
County: herts
Country: england
M.E. Duration: ?
Posted on: Wednesday, March 15, 2006, 10:40 AM

i was searching the net when i came across your web site. i suffer from depression but its got worse over the past few months and i was looking for help, but now i think i might have ME. your site has really helped me, thanks.

From: suzanne HUMPHREY
Town: peterborough
County: cambs
Country: uk
M.E. Duration: 6 months
Posted on: Tuesday, March 21, 2006, 04:51 PM

great site thanks..easy to explain to others now aswel as understand myself

From: Kimi Knapp
Town: Dartford
County: Kent
Country: England
M.E. Duration: 5 months
Posted on: Wednesday, March 22, 2006, 10:07 PM

i have not yet been diognosed by a doctor for ME but i have most of the symptoms and problems and my G.P is quiet sure this is the problem but she has to rulle out other things first. i have looked on lots of sites about this but yours was the best for explinations and help and advice so thankyou xxxxxxxx

From: Pam Charlton
Town: Barnetby-Le-Wold
County: Scunthorpe
Country: U.K.
M.E. Duration: 18 months
Posted on: Thursday, March 23, 2006, 03:01 PM

My daughter has suffered ME for th last 18 months & was diagnosed as such in January of this year

From: Louise
Town: Newport
County: Gwent
Country: UK
M.E. Duration: My sister has it
Posted on: Friday, March 24, 2006, 09:48 PM

I am going to help my sister sort out her home help she has a lady she trudts to help with cleaning we are seeing if we can afford the cooking as well thrown in to help my sister who has two young children it is geetting on top of her. We will be looking at her diet after I noticed you have info on foods I said to her today that she should est the right foods. She does'nt at the moment. Well done for setting up this web page

From: Linda Skilton
Town: Peterlee
Posted on: Tuesday, March 28, 2006, 08:50 PM

From: Linda Skilton
Town: Peterlee
County: CO Durham
Country: England
M.E. Duration: 30 years
Posted on: Tuesday, March 28, 2006, 08:52 PM

I was wrongly diagnosed with Sarcoidoscis, but it has been decided now that I have had M E all these years.

From: zena Bates
Town: enfield
County: middlesex
Country: united kingdom
M.E. Duration: doctor always says it a 24 hour bug
Posted on: Tuesday, April 04, 2006, 09:23 AM

didn't know i had this till yesturday, i have had a number of blood tests etc due to pains in my joints doctor always said i was ok so i left it at that. i am always tired no matter what i do i suffer with headaches buzzing in ears all the time no consentration loss of labido ( doctor said i'm fine ) mood swings cry at the drop of a hat oh list goes on and on it was only that i was reading a magazine in bed after having what doc said was a 24 hour bug i have this funny feeling then i start to get cold and nothing seems to warm me up but at same time i'm burning up i can't stop shaking from head to toe and my feet and hands are freezing it useally last over night and next day or two i spend in bed as the pain in my legs and arms realy hurt, so reading this artical i asked my daughter to look up sympoms etc

From: PAULINE PARKES
Town: BRIERLEY HILL
County: WEST MIDLANDS
Country: ENGLAND
M.E. Duration: 18 MONTHS
Posted on: Thursday, April 06, 2006, 08:08 AM

VISITING THIS WEBSITE HAS MADE ME FEEL SO MUCH BETTER, AS I SOMETIMES FEEL LIKE I AM THE ONLY PERSON WHO UNDERSTANDS THIS ILLNESS. I HAVE TAKEN ON BOARD THE TIPS

From: MARIE ELLIS
Town: SOUTHAMPTON
County: HAMPSHIRE
Country: GREAT BRITAIN
M.E. Duration: AWAITING DIAGNOSIS
Posted on: Tuesday, April 11, 2006, 05:52 PM

THIS HAS BEEN INCREDIBLE TO READ. AFTER MONTHS OF FEELING ROTTEN, RECUURRING INFECTIONS AND ACHES, FEELING LIKE IM GOING BONKERS. nOW I HAVE A STARTING POINT TO GO FROM. THANKYOU VERY VERY MUCH.

From: MARIE ELLIS
Town: SOUTHAMPTON
County: HAMPSHIRE
Country: GREAT BRITAIN
M.E. Duration: AWAITING DIAGNOSIS
Posted on: Tuesday, April 11, 2006, 05:52 PM

THIS HAS BEEN INCREDIBLE TO READ. AFTER MONTHS OF FEELING ROTTEN, RECUURRING INFECTIONS AND ACHES, FEELING LIKE IM GOING BONKERS. nOW I HAVE A STARTING POINT TO GO FROM. THANKYOU VERY VERY MUCH.

From: Roger Morgan
Town: Coleford
County: Gloucestershire
Country: UK
M.E. Duration: Diagnosed in 1997
Posted on: Saturday, April 15, 2006, 09:19 PM

Even though I was diagnosed in 1997 I had my symptoms begin around an attack of shingles in 1985. I was until recently taking 25 mg amitriptyline, but have come off this drug because of suffering with diarrhroa. I may go back to taking a drug I use to take; Gabapentin (Neurontin) But both drugs are not the ideal answer.

From: sammy
Town: hampshire
County: hampshire
Country: england
M.E. Duration: my sister has
Posted on: Monday, April 17, 2006, 10:35 AM

my lilltle sister who is 11 has just been offered a place at a sports school and she is really amazing at sport!! unfortunaltey she has all the symptoms of M.E and is in uncontrolable back pain and in resulting in that she got taken to hospital in ambulance. They have not confirmed M.e but they say they areb pretty sure it is! i am so sad as she is a truly amazing athelete and rides horses really well! If anyone has any tips on how to fight M.E or how to fight it please please emial me on rainbowgirl_6@hotmail.co.uk

From: Jlynn
Town: El Dorado Hills
M.E. Duration: since 1990
Posted on: Thursday, April 20, 2006, 09:54 PM

Your site was wonderful for others to try and understand. They said they liked the cloured pages it helped break up the reading. I myself liked the info. short and to the point as people that are not ill dont want to read alot of info. So great job ! Are you going to have more inf. thank you hugs jlynn

From: Ian Baker
County: Co Durham
Country: England
M.E. Duration: 7 months
Posted on: Monday, April 24, 2006, 08:02 PM

I am 15 years old.. I have had the symptoms for 7 months but have only recently been diagnosed. I have not been to shcool since November 2005 and have a brilliant home tutor called Sheila, who knows all about my illness. I used to have a very active life, rugby, the gym etc. Some days are good and some days are not so good and some days are really bad. I just want to be the old me again and not the me with ME.

From: karen roberts
Town: doncaster
County: south yorkshire
Country: england
M.E. Duration: ? not sure I have
Posted on: Sunday, April 30, 2006, 08:46 PM

reading your website makes me think I have. The physical effort of typing this note says I may have !!!!!

From: Sandra Platford
Town: Portsmouth
County: HANTS
Country: England
M.E. Duration: Havn't been diagnosed
Posted on: Sunday, May 07, 2006, 05:38 PM

Interesting.

From: Amanda Wall
Town: stourport on severn
County: worcestershire
Country: uk
Posted on: Monday, May 08, 2006, 10:08 AM

I have been suffering with me symptoms for the last two and a half years doctors have called it chronic fatigue but not me, i have been taking steriods for the last two years but they have now decided they are not benefiting me, my cortisol levels are down and i struggle with day to day activites.

From: Sue Pyke
Town: Peterborough
County: Cambs
Country: England
M.E. Duration: since 1995
Posted on: Tuesday, May 09, 2006, 01:32 PM

I suffered quite badly for a year, now I am usually pretty well these days except for the days when I feel my 'plug has been pulled'. I thought it would get better but I realise now I have learned to live with it, but it is so frustrating to feel so knackered at times!

From: angela dixon
Town: gateshead
County: tyne and wear
M.E. Duration: 12 years
Posted on: Friday, May 12, 2006, 10:03 PM

hi my name is angie ive had m.e. for 12 years and just eventually got a real diagnosis in dec last year after fighting year in and year out with my doctor. i think your site is great and id like to say well done and keep up the good work. love angie x

From: kally
Town: wicklow
County: co wicklow
M.E. Duration: been in bed for over 3 years now
Posted on: Saturday, May 13, 2006, 12:43 AM

suddenly, I realise I am suffering from something. I have been putting the exhaustion down to "things" for too long now, I hate the sun the light, conversation, friends, yet I am so lonely always in bed and when I go out I look normal so how can it be explained?? This is like living two lives. and constantly telling lies to pretend you are busy... busy sleeping ....

From: CJ Kelly
County: Hampshire
Country: UK
M.E. Duration: A few years at least
Posted on: Saturday, May 13, 2006, 01:41 PM

Just discovering what ME is all about...What a great website, it is so clear and easy to read, my husband just read some of it and has a better picture of ME now (better than just from my babbling). Thanks especially for your focus on stress and relaxing, as I believe I am suffering from over-stress and long-term inability to cope with it. Just wonderful website, really. I'd love to read more about pacing, and perhaps exclude some of the moving words/arrows on the pages, which would make it easier to look at, say, for someone with a chronic eye problem or headache. Hope and Health, CJ

From: Laura Taylor
Town: Newmarket
County: Suffolk
Country: UK
M.E. Duration: 6 years
Posted on: Monday, May 15, 2006, 11:28 PM

I got ME at the age of 15 and therefore missed a lot of school as I never had any energy to do anything but thanks to a Homeopath he managed to help me to sit my GCSE's, A levels and I have nearly finished my degree. I developed bad stomach pains during uni and was referred to a consultant who did every test possible and they showed nothing. Recently I have had a bad relapse due to extreme stress and have developed very bad dizziness, lack of concentartion and bad muscle pains which has lead to difficulty in walking as well as many other symptoms. At 21 I have only just got a diagnosis from the doctor as they have always told me I was a typical teenager who wasnt getting enough sleep!The website has showed me that there are many other sufferers like myself and that there are many different things I can do to

From: marcia feek
Town: sheffield
County: south yorkshire
Country: gt britain
M.E. Duration: just diagnosed
Posted on: Monday, May 22, 2006, 10:20 PM

this is a great website, i thought all my "ailments" were in my head but now i know they are not, the dizziness and shaking are hard and feeling constanly tired is so annoying, i feel so helpless sometimes it takes five times as long to do things than they normally do

From: Matthew Smith
Town: Huddersfield
County: West Yorkshire
Country: England
M.E. Duration: Diagnosed November 2005
Posted on: Tuesday, May 23, 2006, 11:03 PM

I am very gratefull for the information that is contained on this site, even though I have a very good Doctor, I have had to try and understand this condition for myself. I am still utterly devastated by the diagnosis, after having various blood test, it appears there was evidence found of a previous, very nasty virus (I was very ill at one point)and together with my medical history, a diagnosis was made. I knew something had happened to my body, because it seems after that virus(epstien-barr) my body has not recovered. I can relate to amny of the symptoms, including overwhelming tiredness, brain fog, pains etc, etc....in one way it was a relief to finally find out what was going on with my body..but in another, its left me devastated...I am 42 years old and I'm very concerned about my future. I am glad tha

From: Henry Howe
Town: Brookwood
County: Surrey
Country: England
M.E. Duration: /
Posted on: Thursday, May 25, 2006, 01:18 PM

Myself and my girlfriend suspect that she has M.E. I've been going through this website and all the symptoms I've read are identical to the ones my poor girlfriend have. If anyone who reads this knows of new ways to treat M.E. please could they let me know by sending me information to my e-mail, it would be extremely appreciated and taken into consideration, thank you. my e-mail address is : henry_flyboy@hotmail.co.uk

From: Angela Lewis
Town: Tenby
County: Pembrokeshire
Country: Wales
M.E. Duration: Just diagnosed?
Posted on: Friday, May 26, 2006, 08:38 PM

Not me, my 16 year old daughter Rhian ( currently sitting GCSE exams, six down and nine to go). Has had periods of poor health(tired, dizzy, light headed,sore throat, head ache for nearly 2 years. Drs. kept suggesting different reasons, did lots of tests, all clear. Decided it may be linked to her Reflex Anoxic Seizures. Referred her to a consultant who decided M E.

From: C.Worboys
Town: Bexhill on sea
County: East Sussex
Country: England
M.E. Duration: 18 years
Posted on: Friday, June 02, 2006, 12:05 PM

i have improved dramatically so never give up! i basicallly lead a semi normal live but have to nap and eat well. good luck to you all. Prayin helps too!!x

From: Margeriep

From: Lea
Posted on: Wednesday, June 14, 2006, 09:44 AM

Your site has helped me a lot because I think I have M.E and I've identified my symptoms. Thanks.

From: Jean Hendy
Town: Plymouth
County: Devon
Country: uk
M.E. Duration: at least 2 years
Posted on: Saturday, June 17, 2006, 06:46 PM

I am undiagnosed as my GP was not very understanding when I consulted him a year ago. Offered me anti depression medication. Consequently have little faith in him or the profession.

From: rettkbd
Town&: rettkbd
County: rettkbd
Country: rettkbd
M.E. Duration: rettkbd
Posted on: Wednesday, June 21, 2006, 04:57 AM

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From: su roper
Town: cannock
County: staffordshire
Country: uk
M.E. Duration: 18 months
Posted on: Monday, June 26, 2006, 12:34 PM

Hi. I have just read all your info. It is a great help. I have just been sacked from a job I had for 18 years so I feel a bit sad. I am housebound I only go out occasionly with my husband and then I have to either come straight back or sit in the car.I am more fortunate than some and less fortunate than others. It started with Influenza and has turned into something I get very angry with. Anyway thankyou for your helpful website. su...

From: karen
Town: leeds
County: west yorkshire
Country: uk
M.E. Duration: since september 1988 on and off
Posted on: Friday, July 14, 2006, 12:20 AM

hello,gd idea to have a site like this,hope you are feeling better xx

From: karen
Town: leeds
County: west yorkshire
Country: uk
M.E. Duration: since september 1988 on and off
Posted on: Friday, July 14, 2006, 12:21 AM

hello,gd idea to have a site like this,hope you are feeling better xx

From: Cherie
County: Hampshire
Country: UK
M.E. Duration: 18yrs but only just diagnosed this month!
Posted on: Friday, July 14, 2006, 07:32 PM

What a great web site. Informative, easy to understand and well laid out (although I did have some trouble reading some of the text on coloured background when I wasn't feeling so good as I am today. - my only criticism though.) I'm going to give this site's address when explaining to my music pupils about my illness. I also will quote it when my "friends" tell me that I'm overdramatising the fact that I need to rest whenever I need to rest. Most of them are great but a few are sugesting that I'm making excuses so that I don't have to do chores etc. and my Auntie doesn't believe I have ME because she saw me dancing a lot at my cousine's wedding. What she didn't see was that I rested most of the week to be able to dance and have been ill the last 4 weeks since then, probably because of it. Best wis

From: Cherie
County: Hampshire
Country: UK
M.E. Duration: 18yrs but only just diagnosed this month! Finally found a doctor to listen to me
Posted on: Friday, July 14, 2006, 07:36 PM

Best wishes to you all, Cherie

From: Janet Burvill
Town: London
Country: United Kingdom
M.E. Duration: 9 years
Posted on: Saturday, July 15, 2006, 09:04 PM

The worst of chronic fatigue sydrome is behind me but I still have the symptoms to a lesser degree. I always have to pace myself and I still need to sleep a lot most afternoons. I try to be positive but depression rears its ugly head when my memory is quite affected or I am not able to do something because of the condition.

From: Sue Cranstone
Town: Walton on the Naze
County: essex
Country: england
M.E. Duration: Have not been diagnosed but seems as though i may have M.E
Posted on: Tuesday, July 18, 2006, 11:52 AM

Very good informative website. I am finding doctors at my surgery very difficult blaming most of the pain and the way I feel is in my headsaid as i am a manic depressive whose had a breakdown. Every other symptom is blamed on my scolliosis that I had to get diagnosed privately as my doctors refused me to see a specialist I have been having constant bouts of viral chest throat and sinus infections on and off for 1 and a half years all I want is to get better all I am told is lose weight and excercise more and to be forwarded to a nut doctor as my depression must be causing my pain. I have been reading lots of M.E websites and am trying to find out a way if there is a way to diagnose as I am sick of going to my Doctors who dont seem to want to know me no more any help or suggestions for me or am i a lost cause.

From: SUE OLIVER
Town: SHEFFIELD
County: SOUTH YORKSHIRE
M.E. Duration: JUST BEEN DIAGNOSED!
Posted on: Tuesday, July 18, 2006, 09:39 PM

DONT KNOW A LOT ABOUT IT?

From: Adrian
Town: Southampton
County: Hampshire
Country: Great Britain
M.E. Duration: Don't Know
Posted on: Tuesday, July 25, 2006, 04:20 PM

I havn't been diagnosed with M.E., but I'm pretty sure I have it. Your site has been very informative. Now I know I'm not imagining my symptoms and hav'nt just become a lazy person I feel more confident about going to my GP. Thank you for your help.

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Town: None
County: None
Country: Poland
M.E. Duration: None
Posted on: Saturday, August 05, 2006, 04:14 PM

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Town: None
County: None
Country: Ukraine
M.E. Duration: None
Posted on: Sunday, August 06, 2006, 03:15 AM

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From: andy vidler
Town: kempston
County: beds
Country: england
M.E. Duration: 4 years
Posted on: Sunday, August 06, 2006, 11:27 AM

iv always been a really active & fit person,& just thought i felt like i do because i was alwys burning the candle at both ends,but 4years ago it had me beat,until i was diognoisd with m.e.i felt a fraud,n still do,its taken me 4years 2accept im ill & it is a serious illness,i would give any thing 4 a cure.

From: Ruslan Varyhin
Town: None
County: None
Country: France
M.E. Duration: None
Posted on: Monday, August 07, 2006, 03:09 PM

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Town: None
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M.E. Duration: None
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From: Shirley
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County: Gwynedd
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M.E. Duration: 20 years +
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Continuation(the form was not big enough) He then told me to read a book about food. It was about the blood type diet, title, Eat Right 4 Your Type. I bought the book the following day and when I read it, the theory made complete sense to me. I followed the eating regime for my blod type and within weeks I was feeling a whole lot better, losing the extra "weight" I had gained, clearing my brain and regaining the strength in my muscles. I still have to follow this regime but I am convinced that this book saved my life because at the time I was so ill. If one looks at the symptoms of M.E. and food sensitivities, they are very similar. I will add that I had tests at the hospital for food allergies and the tests results all came back as normal. Food sensitivities will NOT show up on an allergy

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County: Gwynedd
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M.E. Duration: 20 years +
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Continuation - page 3 I would advise all sufferers of M.E. to try this blood type eating regime because I firmly believe that it will help a large number of them.

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Town: Sittingbourne
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